Hi you all, I hope you haven't given up on checking in on Lisa. I was able to text with her for a few minutes yesterday afternoon and so I am going to give you an update on what she told me. I don't understand all the medical "lingo" so I hope I can actually give you the information correctly. She continues to press on under much pain. She is on so much pain medication to cope with these migraines she gets and is just trying to keep out of the hospital as much as possible. Lisa's last chemo treatment is next week and then she will under go radiation treatment every day for the next 7 weeks. In the mean time, she now has a new head doctor outside of Kaiser. He has looked over Lisa's records and seen some areas of concern regarding her treatment at Kaiser. First, she has had two spinal taps done with reports stating there is too much pressure.( I'm not sure where but I believe it is the brain). He wanted to know what Kaiser did about this. Lisa replied to him that she never got results from them regarding these spinal taps. He said that spinal fluid on the brain is normally suppose to be a count of 10-20, with a 20 being extremely high. Lisa was at a 25 and that was over a year ago. This would apparently explain the bad eye sight she has developed and how certain medicines work for her or not. She said she will have another spinal tap soon (I think to assess her numbers again) and then possibly surgery to remove the pressure. This might be the source of her migraines and as you can well imagine the frustration of all the time and money they have spent and put into her care when something could have been done to relieve her of this problem. So, aside from her battling cancer, I think her main source of pain and discomfort has been from these migraines. This is what keeps her from being able to keep in touch with many of us, because she is on so many pain medications so that she might be able to stay at home, she can't drive let alone concentrate on being able to answer us all. I know she covets all the texts and messages she can get and the encouragement she receives from them, so thank you for that!
Please continue to keep her in your prayers, for this doctor to be able to help relieve her of these migraines. For her last chemo session and for the next 7 weeks of daily radiation treatments. Please continue to pray for their family and for the kids. I know Lisa would say thank you and that she loves and misses everyone!
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15 years ago
